Hope Unites Us!

The Children’s Neuroblastoma Cancer Foundation (CNCF) is the premier source for neuroblastoma information and resources. Comprised of families just like yours, we are committed to finding a cure for neuroblastoma through research, education, awareness and advocacy.  Join us!

About CNCF

Medical Advisory Board

The Children’s Neuroblastoma Cancer Foundation (CNCF) is a non-profit national health organization committed to finding a cure for neuroblastoma through research, education, awareness and advocacy. The premier source for neuroblastoma information and resources, CNCF initiatives educate the public about a disease dramatically lacking in awareness and funding. It serves as an advocate for families, as well as a liaison between healthcare providers and families.

CNCF was created in 2000 by the family and friends of Nick Tallungan, who at 10 years old, lost his courageous battle with neuroblastoma. One brave child motivated us to make a difference – for all families affected by this disease.

Today, CNCF is a global foundation representing hundreds of families. Our mission: to help fund a cure for neuroblastoma. Through the generous donations of the business community, families and friends, we create resources for families, educate the public and drive greater awareness – and funding – for neuroblastoma. We provide a forum for patients and families to share their experiences. Our national educational programs bring together clinicians, researchers and medical experts to support our mission.
 
The mission of the Children’s Neuroblastoma Cancer Foundation (CNCF) is to find a cure for neuroblastoma through research funding, education, awareness and advocacy programs. To help us achieve our goals, we established a Medical Advisory Board, comprised of some of the most respected neuroblastoma experts in the world.

Since neuroblastoma cancer is rare, it is imperative that dollars raised are put to the best use in order to hasten the research process. Through collaboration and focused discussions, our renowned Medical Advisory Board provides expert guidance in determining the most promising neuroblastoma research projects to fund so our resources will have the most impact.

Members of the Medical Advisory Board help identify relevant topics to be addressed each year at CNCF’s Annual Parent Education Conference. This valuable program strengthens the relationships between the parents of neuroblastoma patients and the medical team treating their child in order to improve communication throughout their neuroblastoma journey.
 
Medical Advisory Board
 
Darrell Yamashiro, MD, Chair
Morgan Stanley Children’s Hospital
Columbia University College of Physicians and Surgeons

Patrick Reynolds, MD
Texas Tech University

Stephan Grupp, MD
Children’s Hospital of Philadelphia

Julie Park, MD
Seattle Children’s Hospital

Rochelle Bagatell, MD
Children’s Hospital of Philadelphia

Nai-Kong Cheung, MD
Memorial Sloan Kettering Cancer Center

Consultant: John Maris, MD, Children’s Hospital of Philadelphia
Consultant: Susan Cohn, MD, Comer Children’s Hospital, University of Chicago
 

What is Neuroblastoma?

Neuroblastoma is a solid tumor cancer that arises in immature nerve
cells and strikes primarily infants and children. It is the most common
cancer affecting infants with an incidence rate of almost double that
of leukemia. Its cause is unknown. Nearly 70 percent of children
diagnosed with Neuroblastoma have advanced-stage disease. Less than
40 percent of children with advanced disease live five years.
 
http://www.cncfhope.org/What_is_Neuroblastoma
 

Funded Research

Since 2005, the Children’s Neuroblastoma Cancer Foundation has funded more than $2 million in neuroblastoma research and programs. The following is an overview of the grants CNCF has provided.

 
  • Dr. Ting Tao: Dana Farber Cancer Institute
 
  • Dr. Bilal Omer:  Baylor College of Medicine
 
  • Dr. Jason Shohet:  Baylor College of Medicine
 
  • Dr. Julie Park:  Seattle Children’s Hospital
 
  • Dr. Sam Volchenboum: Comer Children’s Hospital
 
  • NANT, SIOPEN
 
  • Dr. Susan Cohn, University of Chicago
 
  • Dr. Susan Cohn, University of Chicago
 
  • Dr. Nai-Kong Cheung, Memorial Sloan Kettering
 
  • Dr. Heidi Russell, Texas Children’s Hospital
 
  • Dr. Kelly Goldsmith, Children’s Hospital of Philadelphia
 
  • Dr. Eugene Kim, Baylor College of Medicine
 
  • Dr. Hong Xu, Memorial Sloan Kettering
 
  • Dr. Barry Mauerer, Texas Tech University
 
  • Drs. Seeger/Reynolds, Children’s Hospital LA
 
  • Dr. Susan Cohn, University of Chicago
 
  • Dr. Cynthia van Golen, Delaware State University
 
  • Dr. Elizabeth Beierle, University of Florida/ University of Alabama, Birmingham
 
  • Dr. Tasnim Ara, Children’s Hospital Los Angeles
 
  • Dr. Alexandre Chlenski, University of Chicago
 
  • Dr. Kristina Cole, Children’s Hospital of Philadelphia
 
  • Dr. Nai-Kong Cheung, Memorial Sloan Kettering
 
  • Dr. Sonia Hernandez, Columbia University
 
  • Dr. Jason Shohet, Baylor College of Medicine
 
  • Drs. Seeger/Reynolds, Children’s Hospital of Los Angeles
 
  • Dr. Edward Attiyeh, Children’s Hospital of Philadelphia
 
  • Dr. Louis Chesler, University of CA, San Francisco
 
  • Dr. Radoslaw Zagoadzon, Beth Israel Deaconess
 

Educational Programs